Usually when kids have the same issues he does we don't give them a long life expectancy and usually the whole time they are on earth they fight...hard. He's been fighting hard but it doesn't look promising.
However, I serve a G-d that does miracles. I serve a G-d that gives good gifts. And I serve a G-d that hears our cries. I'm fighting for a miracle for my little buddy. I've been asking for a new heart. A creative miracle and a complete and total new heart. That's what he needs to make it.
Recently a kid came to see us who was told he didn't have a chance. His mom didn't agree. She told everyone she knew he would be ok. She stood her ground. Then there he came, miracle child. I totally believe the L-rd healed him...there's no medical way he should be here the way he is now.
I know we don't understand the L-rd and I know He could certainly do miracles in all the children but for some reason that's not what He does. Whatever happens I'm still going to know He is sovereign, but, I'm going to stand my ground. I'm fighting for my little buddy. I'm asking big...for a new heart, a complete and total miracle. Please fight with me. He deserves to be fought for. And I want the people I work with to see the G-d I serve.